Masha is 6 years old and has Wolf-Hirschhorn syndrome. Wolf-Hirschhorn syndrome (WHS) is an extremely rare chromosomal disorder that affects many parts of the body. Masha was born with a cleft lip and palate, heart disease, kidney issues (reflux) and recurrent chest infections. Masha’s mother is raising her alone and their monthly income is only US$100
In 2018 Maya’s Hope funded cleft palate repair surgery, physical therapy, medications, diapers and formula for Masha. She is now thriving! We want to continue to support Masha and her mama in 2019! We are raising funds to cover speech language therapy, physical therapy, hippotherapy, formula, diapers and medications for Masha! Click HERE to donate!
Or if you would like to become a monthly sponsor for Masha, you can sign up HERE.
Hello, dear Maya and Keshia!
We thank you from the bottom of our hearts for the help! Thanks to you, Masha’s life has become more intense and interesting.
Over the past six months, we have achieved good results. All this time we had classes at the rehabilitation center with a rehabilitation therapist, a pathologist, speech therapist, classes according to the Tomatis method and, most importantly, the last stage of surgery on the hard palate. Masha feels good. From a half-asleep child, Masha turned into an active girl, who suddenly looked with interest at the world around her. There was a desire to live and go forward, at least with small but confident steps. Masha has already confidently learned to sit down and sit on her own for a long time. Thanks to the work with the rehabilitation specialist, as well as the addition of a special caloric intake to the diet, the muscles became stronger. Thanks to this, walking has improved significantly.
Ahead – work with a speech therapist. After the operation on the hard palate Masha’s guttural sounds changed. We hope that we will be able to give Masha a voice.
The next stage of rehabilitation will be more difficult: classes with a speech therapist, classes on cerebellar stimulation, as well as hippotherapy will be added, which will help Masha better keep her balance when walking.
We will be immensely grateful if we have the opportunity to take rehabilitation classes in 2019.
Cheers and all the best to you!
Elena, mother of Masha